Sunday, November 17, 2013

Dear World

Dear World

You never know what knowledge there is in the stars!

You could possibly sit and think and have a puff of the pipe to wonder.......
Where did that big long stick dissappear to?
Remember, that stick is how the world rotates in circles!
I have been frustrated by this effect since the 16th of April 2012, my inner awakening after my Stroke.
I'm now 18 months down this path and I still have to work on it every day.
I know what to say, but will it come out to play with me?
You can't see what Aphasia looks like, you can't touch it.
This is another Hidden Disability that I own.
I could talk about this for some time, but here is Speakability Alphasia instead.

Aphasia Information

Aphasia is a life-disabling condition caused by damage to the language centres of the brain. Aphasia can be caused by a stroke, head injury, brain injury or other neurological condition.

ID Card
The communication difficulties that result from this brain damage will generally mean that the person with Aphasia will find it very hard or impossible to undertake many everyday activities such as shopping, making a telephone call, reading, following a film or joining in a conversation.
Someone with Aphasia may have problems with any one, or more, of the following:
  • talking
  • listening
  • understanding
  • writing
  • using numbers
Aphasia is a complex condition. It affects each person differently and may be hardly noticeable or very severe. A person with Aphasia may find that their communication difficulties can change from day to day or even hour to hour. They are likely to be worse when tired, unwell or under pressure.
People with Aphasia have described the experience as being:
"locked inside my own head"
"everything been washed from my brain"
Having Aphasia is often isolating and extremely frustrating. It usually results in loss of work for people under retirement age, with loss of status, social contact and financial security. Roles within the family may change, and friendships and close relationships come under great strain.
Will it improve?Each individual will have a different set of problems and will achieve a different level of recovery. It is impossible to predict how much language the person will regain.
Using ID Card
However, many people make considerable progress following their illness and the ability to communicate often improves over time. People living with Aphasia ten or more years after the event which caused the condition still report a sense of achievement and progress, even if the improvement might not seem obvious to someone else.
Having the confidence to use whatever language skills remain seems to be even more important than being able to find all the right words. With practice and support, even people with severe Aphasia can continue to express their needs, choices and unique personality.
When you are talking with a person with Aphasia:
  • Choose a quiet place with few distractions if possible e.g. (background noise and more than one person speaking at once can make it very hard to follow a conversation).
  • Gain and maintain eye contact before starting to speak. This will ensure that facial expressions and gestures will give a lot of clues about the message you are trying to get across, even if he/she finds the words hard to follow.
  • Allow plenty of time for him/her to absorb what you have said and to make his/her response.
  • Talk with a normal voice but at a slightly slower speed than usual.
  • Give only one piece of information at a time.
  • Use short sentences.
  • Check you have both understood. Don't pretend you have understood when you haven't!
  • Use familiar words and phrases.
  • Make it clear if you are changing the subject.
  • Have a pen and paper handy, as some people can read or write better than they can speak. Sometimes drawing the message or using other 'props' (pictures, photographs and real objects) can help.
  • It is easier to answer questions with a "Yes" or "No" answer (closed questions) than questions that need a fuller answer (open questions). For example, "Do you want a cup of tea?" rather than, "What would you like to drink?"
  • It is quite common for people with Aphasia to mix related words when they speak (such as 'yes' and 'no' or 'he' and 'she'). Sometimes it can help to use gestures (thumbs up or down) or point to a symbol (tick, cross, smiley face, unhappy face) to check the meaning.
  • Avoid shouting, interrupting, patronising or ignoring the person with Aphasia. Many people with Aphasia have had the experience of being treated as "stupid", "drunk" or "mad", which makes living with a language impairment even harder to deal with. 
 This is me back now.
***This last comment from Speakability Aphashia is my favourite, as that's ME <--- ***
      I have been shouted at, well all of the above, tick, tick, tick to all.
      Does that make me special? (I'm joking now!)
That saved me some typing minutes for painting, writing and excercising.
Why do I not have enough awakening hours for the 24hrs a day that we have.
My 10/20 minutes nap is occassionally 1 or 2hrs.
I thought; when doing these relaxing courses, I'm relaxed.
But they all totally exhaust me from the brain.
I shall carry on...... it's another school day again for me.

Shall I ever get up and tap dance or ballet like in my's good to dream!

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